ALUA - Lusophone Alliance of Experts
in Sickle Cell Disease
Founded in July 2023, ALUA is a new alliance of healthcare providers from countries where Portuguese is the main language and where there is a high prevalence of people living with sickle cell disease.
ALUA works closely with DREPACOMUNIDADE, a platform dedicated to patients and carers of people living with sickle cell disease. DREPACOMUNIDADE is a project of the Portuguese Association of Parents and Patients with Sickle Cell Disease (APPDH), the largest foundation for Portuguese-speaking patients with sickle cell disease in Europe. The member countries of ALUA are: Angola, Brazil, Cape Verde, Guinea-Bissau, Mozambique, Portugal and São Tomé and Príncipe; of these, five are located in sub-Saharan Africa.
Our mission
ALUA 's mission is to promote technical and scientific knowledge to improve the diagnosis and treatment of people with sickle cell disease in Portuguese-speaking countries. ALUA 's goals are to increase the survival rate of people living with sickle cell disease, improve their quality of life, prevent early organ dysfunction, reduce hospitalizations and emergency room visits caused by sickle cell disease, increase treatment capacity for people with this condition, and reduce the need to transfer clinical cases from African countries to Portugal.
Founding Members
Brígida Santos - Angola | Tiago Souza Novais - Brazil | Clarisse Lobo - Brazil | Jane Silva Hankins - Brazil/USA
Linette Fernandes - Cape Verde | Maria Conceição Pinto - Cape Verde | Clementina Monteiro Coelho - Guinea-Bissau Faizana Amodo - Mozambique | Paula Kjöllerström - Portugal | Guilherme Queiroz - Portugal
Celeste Bento - Portugal | Joana Ramos - Portugal | Kelly Pimenta - Portugal/USA
Daniel Carvalho - Sao Tome and Principe | Celdidy Monteiro - Sao Tome and Principe
